World Hemophilia Day 2024″Equitable access for all: recognizing all bleeding disorders”

World Hemophilia Day is celebrated at Hemophilia Welfare Society Karachi (HWSK) Hemophilia Treatment Centre Karachi.
On the occasion of World Hemophilia Day celebrated worldwide on April 17, a cake was cut and gifts were distributed to sick children of this bleeding disorder in Karachi.
HWSK organized a wonderful ceremony at its state-of-the-art hemophilia treatment center located at Nazimabad No. 4, in which children affected by Hemophilia were joined by their parents, government officials, and philanthropists.
Among other dignitaries, SINDH Blood Transfusion Authority (SBTA) Director Dr. Aftab, Hemophilia Focal Person Dr. Arpana Nihal, Convener Federation of Pakistan Chambers of Commerce & Industry Medical and Health Sciences Committee Dr. Zahid Hasan Ansari , Founder and CEO – HWSK Raheel Ahmed, Anis Ur Rehman, Dr. Sarfaraz Jafri, Shahid Dawood, @Fakhar Alam Zaidi and Rana Asghar Ali were present.
The guests cut the birthday cake with the children. On this occasion, the guests also distributed gifts among them.
Talking to the media, Dr. Zahid Ansari said that treatment facilities should be provided in government hospitals for hemophilia patients.
Dr. Arpana Nihal said that the Hemophilia Society is doing great work, but there is a need to create constant awareness about this disease.
Dr. Aftab said that the Sindh Blood Transfusion Authority, Sindh Health Department is working to the awareness of these diseases.
Raheel Ahmed appealed to Sindh Government to make the hematology department functional in every district hospital and provide hemophilia treatment at the doorstep with public-private partnership.
About 30,000 people across the country are living a miserable life with the bleeding disorder hemophilia. An estimated 10,000 of them are in Sindh province alone. A large part of the patient population is deprived of such adequate treatment and support and is suffering from disability, he mentioned.
Raheel Ahmed while appreciating the cooperation of the Sindh Health Department in the treatment of six children appealed to the provincial health minister Dr. Azra Fazal Pechuho to release the funds which were approved in her previous term but are pending since then.
Expressing regret, he said that the summary of treatment of 50 more patients is also pending in the health department and the concerned authorities are not paying attention to issue it, he lamented.
Raheel Ahmed further informed that 15% of the expected 30,000 patients in Pakistan are receiving humanitarian assistance from the World Federation of Hemophilia (WFH). “In Sindh province, only 1,200 patients out of an expected 10,000 are registered with the Hemophilia Welfare Society Karachi. Out of these 1,200 patients, only 15 percent are receiving humanitarian assistance through WFH while only 0.05 percent are receiving treatment from the Sindh Health Department, he added.

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